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School Resources

School Resources for PANS/PANDAS

PANS PANDAS What Schools Should Know - Resources
There are no set guidelines for supports and accommodations for students with PANS/PANDAS within the school setting. PANS/PANDAS is not a "one size fits all" medical condition therefore individualized support is required. Most students with PANS/PANDAS are eligible for accommodations and supports under a 504 plan if the medical condition substantially hinders the student’s ability to participate and manage the education curriculum. Individualized Education Plans (IEPs), under the Individuals with Disabilities Act (IDEA), are required for some students with PANS if special education and/or special services are warranted. Every child with PANS/PANDAS has different severity of symptoms and dissimilar symptoms from one student to the next. For most, school is difficult and requires appropriate accommodations and supports.  Some children are too sick to attend school and will require home bound instruction.

These school resource pages are designed to assist teachers, school nurses, administration and parents. 
More materials are being created so please check back often.
Would you like for NEPANS to come speak to your school or to your group? NEPANS has held numerous meetings with School Nurse organizations; we have met with over 250 school nurses and more are being scheduled. Read More.

NEPANS PANS PANDAS in the School Setting

PANS in the School Setting

PANS/PANDAS diagnostic criteria includes OCD and/or Severe Food Restrictions along with 2 of the following: Anxiety, Emotional Lability, Aggression, Behavioral/Developmental Regression, Deterioration of Learning Abilities, Sensory and Motor Abnormalities, and Somatic Signs.
  • How do those symptoms present at school?
  • What accommodations and supports can be implemented to make school accessible?
PANS Symptoms & Supports @School
Visual Signs of PANS @School
NEPANS PANS PANDAS School Nurses Information

Individualized Health Care Plans - IHCP

School Nurses and Educators often see symptoms and manifestations of PANS that are not seen at home as is vice versa. They are in a unique position to identify abrupt changes, new symptoms or behaviors previously overlooked, which can be a crucial part of the diagnostic criteria. Continual dialogue is needed between educators, school nurses, and parents to help the student participate meaningfully in school.

Individualized Health Care Plans

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Basic PANS PANDAS at School
“Increased awareness [in PANS], however, has not yet translated into readily-available school and community supports, resulting in significant difficulties for students with PANDAS or PANS, and their families throughout the educational process. Our special education processes, often, rely on the assumption that students will make progress throughout the year. In contrast, students with PANDAS or PANS may demonstrate rapid shifts in their social, emotional or academic functioning as their systems react to, then recover from, illness. Teachers may, understandably, be baffled that the student who was passing math last week is now failing the class and acting out daily. Frequently, students with PANDAS or PANS experience such heightened anxiety that it is difficult to attend school at all, and their immune systems may not be able to tolerate exposure to peers during the height of cold and flu season. Teachers already juggling new curriculum, new tests and new evaluation rules may find it virtually impossible to also learn about new neurological disorders and how to accommodate them in the classroom.”
Little Known Disorder Underscores Education Needs Patricia Rice Doran (Baltimore Sun-2014)


PANS Resources for School Nurses

Is It PANS, CANS, or PANDAS? Neuropsychiatric Pediatric Disorders That Are Not Black and White--Implications for the School Nurse
Kathy Bagian, MSN, RN, CSN, Sheila Q. Hartung, PhD, RN (NASN-2015)
Article Abstract

PANDAS in the School Setting
Kathy O’Rourke, MA (School Nurse News-2003)
Read More

NEPANS - Individualized Health Care Plans information
Read More


PANS Resources for Psychologists

Understanding the Impact: A Pyschologist's View
Lisa Scholder, LP 

Read More at PANDASNetwork

What school psychologists should know about streptococcal infections
By Ashley S. Fournier (Division of School Psychology-2012)
Link Broken - Trying to Locate

PANS Resources for SLPs

Effects of PANDAS/PANS on Communication: What SLPs Need to Know"
by Kelly Ward, MS, CCC-SLP and Jessica Edelstein, MA, CCC-SLP :)
ASHA Presentation - Read More


PANS Resources for Neuro-Psychologists

Infection Induced Encephalopathy: Cognitive and Sensory Impairments
Dr. Judith G. Leventhal, PhD.
Watch on YouTube
 or See Below

Neurocognitive Functioning in Youth With Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcus -Adam B. Lewin, Ph.D., A.B.P.P.; Eric A. Storch, Ph.D.; P. Jane Mutch, Ph.D.; Tanya K. Murphy, M.D. (Journal of Neuropsychiatry-2011)
Full Article

Infection Induced Encephalopathy: Cognitive and Sensory Impairments
Dr. Judith G. Leventhal, PhD. 

Excused Absence Laws

Students with PANS are medically fragile. As such, students with PANS may be absent from school more than 9 times a year. Therefore, when absences are medically necessary, they can obtain excused medical absences from their doctor and should not be counted as truant. Some students will be absent sporadically while others will need to be absent from school for longer period of times. The School Nurse, staff, parent, medical doctor should collaborate to determine plans for frequent but sporadic missed days as well as extended absences. Please note that under some circumstances extended absences will require Home Bound instruction.

For More Information

Home Bound Laws

Students with PANS are medically fragile. As such, students with PANS may be absent for extended periods of time and may require Home Bound instruction. Home Bound Instruction is considered the most restrictive placement. Students with PANS may require this placement when a) they are too sick to attend school for extended periods b) require a non-infections environment that the school can’t provide. Instruction is designed to ensure the continuity of educational services between school and home placement. The goal is to facilitate the return to the school setting, as it is a temporary placement.

For More Information

General Sped Resources

Special Education Law
Read more at Wrightslaw

IEPs – From Start to Finish
Read more at Understood

Difference between IEP & 504 plans
Read more at Understood

504 Plans: 5 Common Pitfalls
Read more at Understood

10 Defusing Phrases to Use at IEP Meetings
Read more at Understood

Tips for Parents
Read more at Special Ed Justice

What is Child Find?
Read more at Wrightslaw

The Child Find Mandate: What Does It Mean to You?
Read more at Wrightslaw

Child Find: What It Is and How It Works
Read more at Understood

New England Sped Resources

Connecticut Resources
Materials & Publications
Read more at Connecticut Parent Advocacy Center - CPAC

Special Education Law
Read more at CT Law Help

A Parent’s Guide to SPED in CT
Read more at CT State Dept of Ed

Massachusetts Resources

A Parent’s Guide to Special Education
Read more at The Federation for Children with Special Needs & The Massachusetts Department of Education

Special Education Parent Information
Read more at Massachusetts Department of Education

Rhode Island Resources
Rhode Island Parent Information Network
Read more at RIPIN

Special Education Regulations
Read more at Rhode Island Department of Education

Lyme-School Resources

How Lyme Affects Their Learning
Read more from Lyme Disease Association
 
How Lyme Affects Their Learning
Read More from Lyme Disease.org
 
Identifying Lyme in Schools
Read more from Lyme Disease Association
 
In Services Ideas for Lyme
Read more from Lyme Disease Association
 
Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients
Read more from Lyme Times
 
Lyme Disease and Cognitive Impairments by Robert Bransfield, M.D.
Read more from Mental Health and Illness
 
A Controlled Study of Cognitive Deficits in Children With Chronic Lyme Disease
Read more from Lyme Disease Association
 
Gifted Students and Lyme Disease: What Educators, Counselors, and Parents Need to Know by Patricia A. Schuler
Read more from Gifted Child Today

OCD-School Resources

A resource for school personal
OCD Education Station

Imprisoned in Rituals: Unlocking the Gates of OCD
Cherlene S.M. Pedrick, RN, Diana Harland, BS, CCR
Course Description
PDF

Tourettes-School Resources

Tics And Tourette's Syndrome: An Overview
Read More at SchoolBehavior.com

Teaching Children with Tourette Syndrome
Read more at ERIC Digest

Tourette Education Help
Read More at Tourette Syndrome Association

ADHD-School Resources

40 Accommodation ideas for students with ADHD
Read ADDitudeMag.com


At a Glance: Classroom Accommodations for ADHD
Read more at Understood
 
Teacher Helpline: How How Can I Help to Refocus a Student With ADHD?
Read more at We Are Teachers
 
Top ADD/ADHD Accommodations
Read more at Promoting Success
 
Implementing Executive Functioning strategies in your IEP
Read more at A Day In Our Shoes

Executive Functioning IEP Goals for ADHD and Organization
Read more at Learning Abled Kids
 
Sample IEP Goals that address Executive Functioning
Read more at No Guile: Life and Other Stories from Autism
 
Leading IEP Champion: Strategies to Improve Executive Functioning (EF)
Read more at Global Genes

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  • About Us
    • Mission & History
    • Our Board
    • NEPANS Newsletter
    • Contact Us
  • PANS/PANDAS Info
    • Before/After PANS - Examples
    • PANS/PANDAS Symptom Severity
    • OCD
    • PANS/PANDAS Rating Scales/Tracking Tools
  • Resources
    • PANS Information pdfs
    • Awareness Posters
    • PANS Family Stories
    • Websites/Studies/News >
      • JCAP-Treatment Guidelines & Consensus Paper
      • Research, Studies, Journals
      • Web Articles & Fact Sheets
      • In the News
    • School Resources >
      • Symptoms & Supports
      • Before/After PANS Examples
      • Nurses & Health Care Plans
      • Absences & Homebound
    • Video Library
  • Events
    • Upcoming Events >
      • Outreach Events - Presentation, Tables, Information
    • Past Events >
      • Reaching Recovery Evening
      • NEPANS Integrative Medicine Conference
      • CEC Convention
      • My Kid Is Not Crazy
      • Lecture Series
      • Family Events
      • Family Picnic w PANS Life
      • CT Conf-2014
      • NH Conf-2014
      • Dr's Breakfast-14
      • Parent's Q&A-14
      • RI Conference-2013
      • NEPANS Supported Events
    • Speaker Bios
    • Support Groups
  • Get Involved
    • PANS PANDAS Awareness Day >
      • 2019 Awareness Day
      • 2017 Awareness Day
      • 2016 Awareness Day
      • 2015 Awareness Day
      • 2014 Awareness Day
      • 2013 Awareness Day
    • Spread Awareness
    • Legislative News >
      • CT Legislative News
      • MA Legislative News
      • NH Legislative News
  • NEPANS Blog