Outreach in Action
Awareness. Understanding. Support.
NEPANS is proud to continue its campaign, PANS PANDAS Outreach In Action . . . Awareness, Understanding and Support.
NEPANS participates in outreach events by giving or sponsoring presentations, hosting information tables and/or providing information hand outs.
We are honored to have been asked to come speak to so many audiences. We have spoken to 700+ School Nurses and look forward to hosting more events. Not all events are open to the public. We also can provide information sheets to some events that we can't attend!
We are currently scheduling events for 2017-2018. If you are interested in having NEPANS coming to speak with your group, hosting a table or simply providing information, please Contact NEPANS today!
Does your school have a resource fair? Do your teachers want to learn more about PANS/PANDAS? Does your Special Education PTO want to learn more about PANS/PANDAS? Will your school post Awareness Posters in the lobby and halls during PANDAS Awareness Day? If yes, we can help you!
NEPANS supports efforts of other organizations & individuals in their efforts to spread PANS/PANDAS Education and Awareness.
Upcoming NEPANS Outreach Events
PANS/PANDAS & POTS Seminar Program for Practitioners Only
Brought to you by Center for Integrative Health
Saturday, May 19th9:30-5:30
10:00-11:30am POTS & PANS – overview, synopsis, diagnosis, treatment options -Nancy Hofreuter O’Hara, MD, MPH, FAAP
11:30-12:00pm Dietary and Nutritional Interventions -Vicki Kobliner, MS RDN, CD-N
12:00-1:00pm Meditation, Mindfulness and Mantras - for you, your patients & their families -To Be Announced
Lunch with Q&A
1:00-2:30pm Working Lunch with Q & A Session
2:30-3:00pm Presentation by Patient and her Mother
3:00-3:30pm Q&A and Brief Break
3:30-4:00pm Presentation by Patient and his Mother
4:00-5:30pm Case Studies, Interactive Q&A, Wrap Up
➡️ *This Seminar is for Practitioners only. Your credentials will be checked upon registration and a refund will be given if you do not qualify. A $25 administration fee will be charged for this refund. If you have any questions, please email firstname.lastname@example.org.
Previous NEPANS Outreach Events
4th Annual Midcoast Lyme Disease Support & Education Conference
Lecture & Information Table
Saturday, April 28th, 2018
Augusta Civic Center
76 Community Drive
For More Information
Northeastern University - School Health Academy
Lecture by Peggy Chapman, Panel Discussion with Melissa Glynn-Hyman-Social Worker, Lisa Grisolia-Parent and a School Nurse
The video will be available for a fee via Northeastern University. Nurses can receive credits. More details to follow.
Northeastern's School Health Academy
Walden Center for Education and Research
Lecture by Peggy Chapman, RN - NEPANS Medical Advisor
PANS/PANDAS and Eating Disorders: A Paradigm Shift
PANS PANDAS Parents Panel: NEPANS Board Members, Michelle Danubio and Lisa Grisolia
2017 Walden Center Annual Conference
More than 30 million Americans will experience eating disorders in their lifetime. For healthcare providers, it’s critical to remain updated on the latest clinical insight, research breakthroughs and treatment innovations. New England’s top conference on eating disorders provides just that.
Thursday, October 26, 2017
Connecticut Children’s Medical Center’s Center for Care Coordination team meeting
NEPANS Board President, Gabriella True, presented on PANS at Connecticut Children’s Medical Center’s Center for Care Coordination team meeting. As more families are treated for PANS at CCMC, more education on PANS is needed in many of the hospital’s departments. “It was wonderful to be given the opportunity to provide the coordinators a solid overview of PANS diagnosis, treatment, what the families actually experience on a daily basis and where the gaps are in care.”
The Connecticut Children’s Center for Care Coordination is a team based approach that helps to coordinate services and teaches families to advocate for their kids by linking them to appropriate services outside of the hospital.
NIMH Outreach Partnership Annual Meeting 2017
P.A.N.D.A.S. Network invited NE PANS/PANDAS Parents Association and PandasPans Advocacy and Support to join them at the annual National Institute of Mental Health Outreach Partner Meeting. PANDAS Network is one of the 130 partners. The program strives to improve the public’s access to science-based mental health information through partnerships with national and state organizations.We had a great poster session! Lots of partner organizations came to ask questions and learn more about PANS/PANDAS. We talked about the criteria, diagnosis, treatment protocols and all the emerging science. They left with brains full of information and hands full of information packets to take home. It is a good thing there were three of us there to talk to everyone!
Dr. Josh Gordon, new director of NIMH, opened the session with an overview of NIMH’s goals. Studies on suicide prevention, specifically efficacy and various tools used in screening, were the focus of the first day’s sessions. The second day focused on studies on Bipolar, PTSD, and precision health. PANDAS Network will post some or all of the slides on their website.
You can read the NIMH’s latest Outreach Partner newsletter, which includes a link to their updated PANDAS fact sheet. https://content.govdelivery.com/accounts/…/bulletins/1984f94
Wonder Fair - Furnace Brook Middle School, MA
The Wonder Fair, inspired by the book Wonder by R.J. Palacio, was organized by the SEPAC of Furnace Brook Middle School in MA. At the fair, 6th graders were invited to experience and learn about what it is like to live with a wide range of disabilities and how kids overcome challenges so they can participate equally within our community. The fair reminds us that we are more alike than we are more alike than different despite any challenges or disability.
Jen Vitelli, a NEPANS Founding Member, talked to the 6th graders about what PANS/PANDAS is and what it is like to live with it. Now 326 students are aware of PANS/PANDAS! She also was able to speak with the teachers and give them a more in depth understanding.
NEPANS supplied school specific posters and new handouts specifically with schools, tweens and teens in mind!
Click on the above PANS PANDAS Fliers for pdf versions.
Image credits: www.freepik.com
CTFSN One Voice Conference
NEPANS hosted a table to provide information to attendees of the annual Connecticut Family Support Network One Voice Conference.
Friday, October 7
Registration is free. Hope to see you there!
Bay State Community Services
April 6, 2016
NEPANS Board Member, Lisa Grisolia, gave a presentation on PANS/PANDAS followed by a Q&A Session. Bay State provides several services of benefit to the community including, social, mental health, addiction and correctional services to the South Shore and MetroWest communities.
Southwest Region Professional Development Day for School Nurses
- Dr. Nancy O’Hara, M.D., MPH - PANDAS/PANS – Transforming a Devastating Chronic Illness into a Treatable Disorder
- Joanne Sloan, RN - CT PANDAS Advisory Council Update and results of the Council's study on PANDAS Awareness on CT