We are thrilled announce the launch of a new program,
Every Family Has A Story
These are stories from our community. These are our stories. You are NOT Alone.
No one can tell the stories of what it is like to live with PANS/PANDAS like those that have lived it. The list of symptoms and descriptions of various treatment protocols does not bring the condition to life. The family telling their individual story is what illuminates the day-to-day struggles and triumphs our children and families experience. The aim of sharing these stories is to help families not feel so alone in their struggles, to let them know there is a family out there just like them, and ultimately to let them know that there is hope.
We are launching this program with eight stories and will continue to add more. We will be highlighting a couple at a time every couple weeks on Facebook, Twitter and in Newsletters. As more stories are contributed, a wider picture of what the condition is like will form including how many similarities there are and how many differences there are in its manifestation, in the path to diagnosis, in treatment options and in the outcomes.
You can read all the PANS Family Stories by clicking on the Family Story category or Read More...
If you are interested in submitting your PANS Story, please email our PANS Stories Coordinator.
NEPANS Board Members & Special Guests
Many Blog entries are long enough to go onto a 2nd page. Please click Read More in the bottom right of some blog entries!