We have a lot to be grateful for. The PANS/PANDAS journey is not an easy one; it can be filled with exhaustion, heartbreak, worry, frustration, roadblocks and more. But during this time of Thanksgiving we encourage everyone to reflect on their life and see the good things, the rays of hope, and the many things we can be thankful for. NEPANS works to spread PANS/PANDAS Awareness everyday but we could not do it without our large community of children, parents, doctors, teachers, family, researchers, therapists, volunteers, friends and donors. We are thankful for each and every one of you.
with Thanks and Gratitude,
The New England PANS PANDAS Association Board
PANS/PANDAS Holiday Survival Guide
Holidays are fun. But they are stressful even without throwing an autoimmune disease into the mix. Take a deep breath. These are your holidays, no one else's. The holidays get packed with activities pretty quickly. The important thing is to be around family, spending time, trying to catch a breath and being thankful for the little things. Most importantly, find joy in the moment. Here are a few tips from NEPANS to help you!
NEPANS wishes everyone and their families a wonderful, healthy, grateful Holiday Season. Below is a Holiday Survival Guide for PANS/PANDAS Families with a few highlights from our board members.
In a Nutshell
The Family Gathering
We know our incredible PANS/PANDAS kids are dealing with an extremely tough disease. Some are great about rallying behind your family, understand the complexity of PANS/PANDAS and figure out ways to help out. But then there are others who just simply don’t and are flat out not supportive. So if we are gathering with family and friends, sometimes in order to make things work, we need to plan and put some supports in place to make them feel more comfortable, which in turn can make our children feel more comfortable. We also need to make plans that will support our children so they can enjoy the holidays to the best of their ability.
NEPANS Board Members & Special Guests
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