If a child has sudden, acute onset of OCD and/or Food Restrictions & multiple neuropsychiatric symptoms, consider PANS/PANDAS.

  • OCD
  • Food Restriction
  • Anxiety/Separation Anxiety
  • Emotional Lability and/or Depression
  • Irritability, Aggression,  Severe Oppositional Behavior
  • Behavioral/Developmental Regression
  • Deterioration in school performance
  • Sensory or motor abnormalities
  • Somatic symptoms, including sleep disturbances, enuresis or urinary frequency

New NEPANS Information Posters

PANS/PANDAS Meet Up Groups

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Could you use a little more support? PANS/PANDAS is hard road; meeting up with fellow parents can be essential. There are local groups that get together in the Northeast. These groups are independent of NE PANS/PANDAS Association.

PANS/PANDAS Family Stories

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No one can tell the stories of what it is like to live with PANS & PANDAS like those that have experienced it. The family telling their individual story is what illuminates the day-to-day struggles and triumphs our children and families experience.

PANS/PANDAS News, Events, & More

Support Group - Pembroke, MA
When:
Every 3rd Monday
Next Meeting:
Sept 17th -7:30pm-9pm
Where:
50 Mattakeesett Street Pembroke, 2nd Floor

More on Meet Up Groups
Article - Huffington Post
Misdiagnosed: How Children With Treatable Medical Issues Are Mistakenly Labeled as Mentally Ill

Read More In The News
Read Article in Huffington Post
Article
Hidden Invaders- Infections can trigger immune attacks on kid's brains, provoking devastating psychiatric disorders
Read More In The News
Read Article
Article - Natural Awakennings
The Frustrating Misunderstood and Evolving World of PANS/PANDAS

Read More In The News
Read Article
For kids with PANS/PANDAS starting the new school year off on the right foot is not an easy task.  NEPANS has many resources for parents, teachers, school nurses and staff to utilize to assist them in understanding PANS/PANDAS, what accommodations and supports may be needed and examples of health care plans.

NEPANS School Resources

New Studies, Journals, Articles

Pediatric Acute-Onset Neuropsychiatric Syndrome Response to Oral Corticosteroid Bursts: An Observational Study of Patients in an Academic Community-Based PANS Clinic
(Brown Kayla, Farmer Cristan, Farhadian Bahare, Hernandez Joseph, Thienemann Margo, and Frankovich Jennifer. JCAP. July 2017)
Abstract
Association of Streptococcal Throat Infection With Mental DisordersTesting Key Aspects of the PANDAS Hypothesis in a Nationwide Study
(Sonja Orlovska, MD1; Claus Høstrup Vestergaard, MSc; Bodil Hammer Bech, PhD)
Abstract
Streptococcal infection-related autoimmunity and autism: crosstalk in protein functional networks
(Megan Huxley, Joshua Stead, Olga Vasieva - Journal of Systems and Integrative Neuroscience)
Research Article
Effect of Early and Prophylactic Nonsteroidal Anti-Inflammatory Drugs on Flare Duration in Pediatric Acute-Onset Neuropsychiatric Syndrome: An Observational Study of Patients Followed by an Academic Community-Based Pediatric Acute-Onset Neuropsychiatric Syndrome Clinic
(Brown Kayla D., Farmer Cristan, Freeman G. Mark Jr., Spartz Ellen J., Farhadian Bahare, Thienemann Margo, and Frankovich Jennifer. JCAP. July 2017)
Abstract
Improvement of psychiatric symptoms in youth following resolution of sinusitis
Talia Mahony, Douglas Sidell, Hayley Gans, Kayla Brown, Bahare Farhadian, Melissa Gustafson, Janell Sherr, Margo Thienemann, Jennifer Frankovich (International Journal of Pediatric Otorhinolaryngology-2017)
Read Study
A Double-Blind Randomized Placebo-Controlled Pilot Study of Azithromycin in Youth with Acute-Onset Obsessive-Compulsive Disorder. (JCAP-2017)
Read Abstract
Rapid Eye Movement Sleep Abnormalities in Children with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS).
Gaughan T ,Buckley A, Hommer R, Grant P, Williams K, Leckman JF, Swedo SE (J Clin Sleep Med - 2016)
Read Study
Vitamin D Deficiency in Obsessive-Compulsive Disorder Patients with PANDAS: A Case Control Study.
(Noro Psikiyatr Ars-2017)
Read Abstract
Cognitive behavioral therapy and acceptance and commitment therapy as augmentation treatment for (PANDAS): A case report
(A.Pozza - European Psychiatry - 2017)
Abstract
PANS associated with Epstein–Barr infection in child with Noonan syndrome
(G.P.Tisi, M.Marzolini, G.Biffi - European Psychiatry - 2017)
Abstract
Inflammation in the Neurocircuitry of Obsessive-Compulsive Disorder
(Sophia Attwells, HBSc; Elaine Setiawan, PhD; Alan A. Wilson, PhD - JAMA Psychiatry 2017)
Abstract
Hello from the Other Side: How Autoantibodies Circumvent the Blood–Brain Barrier in Autoimmune Encephalitis
(Maryann P. Platt, Dritan Agalliu, Tyler Cutforth - Frontiers in Immunology)
Abstract
Palatal Petechiae in the Absence of Group A Streptococcus in Pediatric Patients with Acute-Onset Neuropsychiatric Deterioration: A Cohort Study
(Mahony Talia, Sidell Douglas, Gans Hayley, Cooperstock Michael, Brown Kayla, Cheung Joanne M, Farhadian Bahare, Gustafson Melissa, Thienemann Margo, and Frankovich Jennifer. JCAP. April 2017)
Abstract
Impact of PANS and PANDAS Exacerbations on Occupational Performance: A Mixed-Methods Study
(Janice Trigilio Tona; Sutanuka Bhattacharjya; Denise Calaprice - AJOT 2017)
Abstract
Prospective Longitudinal Analysis of Immune Responses in Pediatric Subjects After Pharyngeal Acquisition of Group A Streptococci
Nicholas D. Hysmith, Edward L. Kaplan, P. Patrick Cleary, Dwight R. Johnson, Thomas A. Penfound, James B. Dale - Journal of Pediatric Infectious Disease Society-2017
Abstract
  • NEPANS reaches over 2,000 families, doctors, nurses, practitioners, educators and more.
  • NEPANS has educated almost 300 school nurses this year.
  • NEPANS provides outreach information to support groups, conferences, schools, community organizations and more throughout the country.
  • NEPANS has created awareness and education materials which are all available on the website.
  • NEPANS provides 1-to-1 support for families in need.
  • NEPANS organizes conferences, meetings and workshops throughout the year to further educate parents, doctors, nurses, clinicians and teachers.

NEPANS at Work for YOU!!!
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